[1] Abaasa, C., Obua, C., Wakida, E. K., & Rukundo, G. Z. (2019). Psychosocial supports utilized by caregivers of patients with dementia in South western Uganda: A qualitative investigation.
[2] Agyeman, N., Guerchet, M., Nyame, S., Tawiah, C., Owusu-Agyei, S., Prince, M. J., et al. (2019). “When someone becomes old then every part of the body too becomes old”: Experiences of living with dementia in Kintampo, rural Ghana. Transcultural psychiatry, 56(5), 895-917.
[3] Ainamani, H.E., Alele, P.E., Rukundo, G.Z., Maling, S., Wakida, E.K., Obua, C., et al. (2020). Caregiving burden and mental health problems among family caregivers of people with dementia in rural Uganda. Global Mental Health, 7, (e13), 1–7.
[4] Akinyemi, R. O., Yaria, J., Ojagbemi, A., Guerchet, M., Okubadejo, N., Njamnshi, A. K., et al. (2022). Dementia in Africa: Current evidence, knowledge gaps, and future directions. Alzheimers’ & Dementia. 18: 790–809.
[5] Alemayehu, Z. G., Ayalew, B. D., Sime, B. L., Bonger, T. D., Zewdie, Y. A., Keraga, A. S., et al., (2025). Dementia in Sub-Saharan Africa: Risk Factors, Public Perception, and Management Approaches. Journal of Medicine, Surgery, and Public Health, 100204.
[6] Baboolal, N., Davis, G., Stewart, R., Ramesar, J., & McRae, A. (2018). Comparisons between different elements of reported burden and common mental disorder in caregivers of ethnically diverse people with dementia in Trinidad. PLoS One, 13(7), e0201165.
[7] Bernstein-Sideman, A., Al-Rousan, T., Tsoy, E., Piña Escudero, S. D., Pintado-Caipa, M., Kanjanapong, S., et al. (2022). Facilitators and barriers to dementia assessment and diagnosis: perspectives from dementia experts within a global health context. Frontiers in neurology, 13, 769360.
[8] Beyene, D. A., & Berha, A. B. (2023). Management Practice and Clinical Outcomes of Dementia in Sub‐Saharan Africa: A Systematic Review. Behavioural Neurology, 2023(1), 2307443.
[9] Booth, L. N., & Brunet, A. (2016). The aging epigenome. Molecular cell, 62(5), 728-744.
[10] Budson, A. E., & Solomon, P. R. (2021). Memory loss, Alzheimer's disease, and dementia-e-book: a practical guide for clinicians. Elsevier Health Sciences.
[11] Bunn, F., Burn, A. M., Robinson, L., Poole, M., Rait, G., Brayne, C., et al. (2017). Healthcare organisation and delivery for people with dementia and comorbidity: a qualitative study exploring the views of patients, carers and professionals. BMJ open, 7(1), e013067.
[12] Calsolaro, V., Femminella, G. D., Rogani, S., Esposito, S., Franchi, R., Okoye, C., et al. (2021). Behavioral and psychological symptoms in dementia (BPSD) and the use of antipsychotics. Pharmaceuticals, 14(3), 246.
[13] Cipriani, G., Danti, S., Picchi, L., Nuti, A., & Fiorino, M. D. (2020). Daily functioning and dementia. Dementia & neuropsychologia, 14(2), 93-102.
[14] Connors, M. H., Seeher, K., Teixeira‐Pinto, A., Woodward, M., Ames, D., & Brodaty, H. (2020). Dementia and caregiver burden: a three‐year longitudinal study. International journal of geriatric psychiatry, 35(2), 250-258.
[15] Davis, J. D., & Tremont, G. (2007). Impact of frontal systems behavioral functioning in dementia on caregiver burden. The Journal of neuropsychiatry and clinical neurosciences, 19(1), 43-49.
[16] del-Pino-Casado, R., Frías-Osuna, A., Palomino-Moral, P. A., Ruzafa-Martínez, M., & Ramos-Morcillo, A. J. (2018). Social support and subjective burden in caregivers of adults and older adults: A meta-analysis. PloS one, 13(1), e0189874.
[17] Dotchin, C. L., Akinyemi, R. O., Gray, W. K. and Walker, R. W. (2013). Geriatric medicine: services and training in Africa. Age Ageing, 42, 124–128.
[18] Draper, B., Low, L. F., & Brodaty, H. (2018). Integrated care for adults with dementia and other cognitive disorders. International Review of Psychiatry, 30(6), 272-291.
[19] Duodu, P. A., Okyere, J., Simkhada, B., Akrong, R., Barker, C., Gillibrand, W., et al. (2024). Exploration of family caregivers’ experiences on coping in dementia care in Ghana: a phenomenological study. BMC psychology, 12(1), 361.
[20] Gaugler, J. E., Jutkowitz, E., Peterson, C. M., & Zmora, R. (2018). Caregivers dying before care recipients with dementia. Alzheimer's & Dementia: Translational Research & Clinical Interventions, 4(1), 688-693.
[21] Gumikiriza-Onoria, J. L., Mayega, R. W., Nakigudde, J., Giordani, B., Sajatovic, M., Mukasa, M. K., et a;. (2024). Feasibility and acceptability of the World Health Organization’s iSUPPORT program for dementia caregivers in Uganda. Academia Mental Health and Well-Being, 1(2).
[22] Guerchet, M., Mayston, R., Lloyd-Sherlock, P., Prince, M., Akinyemi, R., Paddick, S. M., et al. (2017). Dementia in sub-Saharan Africa: Challenges and opportunities (Doctoral dissertation, Alzheimer's Disease International).
[23] Hailu, G. N., Gebru, H. B., Hagos, G. G., Weldemariam, A. H., Tadesse, D. B., & Mebrahtom, G. (2025). The role of family caregivers in supporting older adults in Africa: systematic review. BMC geriatrics, 25(1), 1-15.
[24] Jennings, L. A., Palimaru, A., Corona, M. G., Cagigas, X. E., Ramirez, K. D., Zhao, T., et al. (2017). Patient and caregiver goals for dementia care. Quality of Life Research, 26(3), 685-693.
[25] Kalaria, R., Maestre, G., Mahinrad, S., Acosta, D. M., Akinyemi, R. O., Alladi, S., et al. (2024). The 2022 symposium on dementia and brain aging in low‐and middle‐income countries: highlights on research, diagnosis, care, and impact. Alzheimer's & dementia, 20(6), 4290-4314.
[26] Kehoua, G., Dubreuil, C. M., Ndamba-Bandzouzi, B., Guerchet, M., Mbelesso, P., Dartigues, J. F., et al. (2019). People with dementia in sub-Saharan Africa: From support to abuse by caregivers: Results of EPIDEMCA-FU program in Congo. Dementia and geriatric cognitive disorders extra, 9(1), 163-175.
[27] Kennedy, B. K., Berger, S. L., Brunet, A., Campisi, J., Cuervo, A. M., Epel, E. S., et al. (2014). Geroscience: linking aging to chronic disease. Cell, 159(4), 709-713.
[28] Kolberg, E., Hjetland, G. J., Thun, E., Pallesen, S., Nordhus, I. H., Husebo, B. S., et al. (2021). The effects of bright light treatment on affective symptoms in people with dementia: a 24-week cluster randomized controlled trial. BMC psychiatry, 21(1), 377.
[29] Krutter, S., Schaffler-Schaden, D., Essl-Maurer, R., Wurm, L., Seymer, A., Kriechmayr, C., et al. (2020). Comparing perspectives of family caregivers and healthcare professionals regarding caregiver burden in dementia care: results of a mixed methods study in a rural setting. Age and Ageing, 49(2), 199-207.
[30] Lambert, S. D., Bowe, S. J., Livingston, P. M., Heckel, L., Cook, S., Kowal, P., et al. (2017). Impact of informal caregiving on older adults’ physical and mental health in low-income and middle-income countries: a cross-sectional, secondary analysis based on the WHO’s Study on global AGEing and adult health (SAGE). BMJ open, 7(11), e017236.
[31] Lea Steadman, P., Tremont, G., & Duncan Davis, J. (2007). Premorbid relationship satisfaction and caregiver burden in dementia caregivers. Journal of geriatric psychiatry and neurology, 20(2), 115-119.
[32] Livingston, G., Sommerlad, A., Orgeta, V., Costafreda, S. G., Huntley, J., Ames, D., et al. (2017). Dementia prevention, intervention, and care. The lancet, 390(10113), 2673-2734.
[33] Mbam, K. C., Halvorsen, C. J., & Okoye, U. O. (2022). Aging in Nigeria: A Growing Population of Older Adults Requires the Implementation of National Aging Policies. Gerontologist, 62: 1243–1250. doi:10.1093/GERONT/GNAC121
[34] Mahomed, A., & Pretorius, C. (2022). Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township. Dementia, 21(7), 2264-2287.
[35] Mushi, D., Rongai, A., Paddick, S. M., Dotchin, C., Mtuya, C. and Walker, R. (2014). Social representation and practices related to dementia in Hai District of Tanzania. BMC Public Health, 14, 260.
[36] Nwakasi, C. C., de Medeiros, K., & Bosun-Arije, F. S. (2021). “We are doing these things so that people will not laugh at us”: Caregivers’ attitudes about dementia and caregiving in Nigeria. Qualitative Health Research, 31(8), 1448-1458.
[37] Owokuhaisa, J., Kamoga, R., Musinguzi, P., Muwanguzi, M., Natukunda, S., Mubangizi, V., et al. (2023). Burden of care and coping strategies among informal caregivers of people with behavioral and psychological symptoms of dementia in rural south-western Uganda. BMC geriatrics, 23(1), 475.
[38] Paddick, S. M., Mkenda, S., Mbowe, G., Kisoli, A., Gray, W. K., Dotchin, C. L., et al (2017). Cognitive stimulation therapy as a sustainable intervention for dementia in sub-Saharan Africa: feasibility and clinical efficacy using a stepped-wedge design. International Psychogeriatrics, 29(6), 979-989.
[39] Pinquart, M., & Sörensen, S. (2007). Correlates of physical health of informal caregivers: a meta-analysis. The journals of Gerontology series B: Psychological sciences and social sciences, 62(2), P126-P137.
[40] Qaseem, A., Snow, V., Cross Jr, J. T., Forciea, M. A., Hopkins Jr, R., Shekelle, P., et al. (2008). Current pharmacologic treatment of dementia: a clinical practice guideline from the American College of Physicians and the American Academy of Family Physicians. Annals of internal medicine, 148(5), 370-378.
[41] Reinhard, S. C., Given, B., Petlick, N. H., & Bemis, A. (2008). Supporting family caregivers in providing care. Patient safety and quality: An evidence-based handbook for nurses.
[42] Salcher-Konrad, M., Naci, H., McDaid, D., Alladi, S., Oliveira, D., Fry, A., et al. (2019). Effectiveness of interventions for dementia in low-and middle-income countries: protocol for a systematic review, pairwise and network meta-analysis. BMJ open, 9(6), e027851.
[43] Tremont, G. (2011). Family caregiving in dementia. Medicine and Health, Rhode Island, 94(2), 36.
[44] Tremont, G., Davis, J. D., & Bishop, D. S. (2006). Unique contribution of family functioning in caregivers of patients with mild to moderate dementia. Dementia and geriatric cognitive disorders, 21(3), 170-174.
[45] Vitaliano, P. P., Zhang, J., & Scanlan, J. M. (2003). Is caregiving hazardous to one's physical health? A meta-analysis. Psychological bulletin, 129(6), 946.
[46] Wakawa, I. A., Musami, U. B., Kwairanga, S. H., Ogualili, P. N., Mahmood, M. Y., Fugu, M. A., et al. (2024). Management of Dementia in a Resource-Constrained Sub-Saharan African Setting: Outcome of a Retrospective Survey of Clinical Practice in the Only Neuropsychiatric Facility in Northeastern Nigeria. medRxiv, 2024-09.
[47] Wang, D., Rushton, S., Ledbetter, L., Graton, M., Ramos, K., & Hendrix, C. C. (2024). Factors associated with memory of informal caregivers: A scoping review protocol. Plos one, 19(1), e0295449.
[48] Wang, J., Xiao, L. D., He, G. P., & De Bellis, A. (2014). Family caregiver challenges in dementia care in a country with undeveloped dementia services. Journal of advanced nursing, 70(6), 1369-1380.
[49] World Health Organization (2015). mhGAP Intervention Guide for Mental, Neurological and Substance Use Disorders in Non-Specialized Health Settings. Geneva, Switzerland: World Health Organization. Available at www.who.int.
[50] Yakubu, Y. A., & Schutte, D. W. (2018). Caregiver attributes and socio-demographic determinants of caregiving burden in selected low-income communities in cape town, South Africa. Journal of Compassionate Health Care, 5(1), 3.